People living with dementia and their caregivers often face isolation, stigma, and limited access to clear and practical support. While dementia is commonly understood as a medical condition, many of the challenges caregivers face are shaped by social and structural barriers rather than the condition alone. The social model of disability highlights how systems, environments, and attitudes create barriers that limit people’s ability to fully participate in their communities. Ageism, ableism, economic inequality, and gaps in healthcare and social services contribute to caregivers feeling unsupported and overwhelmed. Many caregivers must navigate complex responsibilities without accessible information, which can increase stress and reduce their sense of confidence and connection.

This civic engagement project, developed in partnership with the Springfield Dementia Friendly Coalition, aims to create an accessible caregiver resource guide to help caregivers better navigate available support systems. To inform the guide, I am conducting interviews with caregivers, social workers, dementia care specialists, and community leaders to understand their experiences and identify important local resources. The guide will include safety planning tips, emergency contacts, housing and respite care options, communication strategies, and information about community support services. It will be available in both print and digital formats.

This project aims to empower caregivers by increasing access to information and support. More broadly, it contributes to creating a more inclusive and dementia-friendly community by addressing social barriers and strengthening community-based care.